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DysNet Global Self-Help Network Launched To Support People With Limb Differences
pr.com 5 days, 2 hours agoAmbitious project for online community founded by Thalidomide survivors, aimed at uniting limb deficiency groups world-wide. [PR.com]
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SADS Focus On Timothy Syndrome
pr.com 2 weeks agoAlthough Timothy Syndrome is a rare disease, a number of new families affected by Timothy Syndrome contacted the SADS Foundation this year. An awareness campaign designed for anesthesiologists, pediatricians, cardiologists and neurologists is underway. Anesthesia is a known trigger of arrhythmias in Timothy Sydrome, therefore if surgical intervention is required for cardiac repair, extreme care in anesthesia selection [PR.com]
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